Resources

The following website links are provided for your convenience only. Barrow Neurological Institute neither endorses nor is responsible for the content in any way.

Muscular Dystrophy Association

http://www.mdausa.org/

Clinical Trials Links

The following websites have further information about clinical trials related to neuromuscular diseases.

ClinicalTrials.gov

Center Watch

MDA Research

Genetic Counseling & Education Resources

Athena Diagnostics:  A laboratory that provides information about diagnostic testing and diseases.
http://www.athenadiagnostics.com/

Clinical Studies:  Information about clinical research studies provided by National Institutes of Health. 
http://clinicalstudies.info.nih.gov/

National Center for Research Resources (Clinical Research):
http://www.ncrr.nih.gov/clinical_research_resources/resource_directory/

National Society of Genetic Counselors (NSGC):
http://www.nsgc.org

Genetic Testing for Neurological Conditions: Facioscapulohumeral muscular dystrophy (FSH), Huntington's disease, Myotonic Dystrophy, and spinocerebellar ataxia
http://depts.washington.edu/neurogen/

Genetic Alliance: A wide range of resources, information, and support groups.
http://www.geneticalliance.org/

New York Online Access to Health: Consumer health information in English and Spanish. 
http://www.noah-health.org/index.html

Mountain States Genetics Network: Genetics information, services, and articles for healthcare professionals and consumers.
http://www.mostgene.org/index.htm

Genetics Education Center: For educators interested in human genetics and the human genome project. 
http://www.kumc.edu/gec/